Article from Farmers Guardian - Farming with ME

[H.M.]

Well done @H.M.

My wife was diagnosed with Parkinson's last year at 49.
Different I know but it's the things people don't see.

Most people think it's about shaking, but they don't know about what you can't see, in my wife's case the lack of self confidence & low self esteem, the fatigue from the shaking & probably worst of all is the insomnia that goes with it

Thank you

There's so much more under the surface of all these illnesses than the symptom they're most known for isn't there. Best wishes to your wife

 

[H.M.]

@H.M. Were do you find your female replacements. Have you got particular breeders to go to or do you go to the Lincoln Red Website were females are advertised? Breeders often a surplus of females that commercial herds could tap into.
WB

They all come from the Appleton herd at Richmond.
It would be very good for the breed if those surpluses ended up in commercial herds, like other maternal breeds do

 

[Robt]

Are there any more suffers of this dreadful problem on here? How do you keep on farming?
WB

I read this thread with great interest and compassion. I have just befriended a lad in the village who has had ME for 5 years and needs a mobility scooter. He is forced to stay at home and craves some friendship.

 

[Christoph1945]

My wife recons that she suffers from 'me' but that doesn't really count does it?

 

[Doing it for the kids]

My wife recons that she suffers from 'me' but that doesn't really count does it?

mine has to suffer with me, suffering from ME - tell her she is lucky!

 

[Christoph1945]

I was recently, only just today, doing some idle thinking and with all this novel research going on into new ways of tackling Covid-19 I got to wondering if the researchers may stumble upon a way of tackling ME and perhaps even aging.

Many years ago my mother's brother, uncle Tom, repeatedly suffered from stomach ulcers and had section after section of his stomach removed, until more severe complications carried him away. Years later I believe that medics discovered that stomach ulcers were initiated by a virus and consequently changed the manner of stomach ulcer treatments.

Many thanks for your reply.

Chris

 

[Wurzeetoo]

My sisters got ME not a condition I could deal with credit to all who are managing some kind of Normal day. I was always told it is particularly rare in men but reading on here it seems to be untrue

 

[Wolds Beef]

@Robt We managed to find a used Mobility scooter for Katie. We had RR of a scooter also demonstrated but it cost as much as a classic Tractor!! Katie is happy with hers as it ends up parked down the Cattle lines at shows and so on.
WB

 

[H.M.]

My sisters got ME not a condition I could deal with credit to all who are managing some kind of Normal day. I was always told it is particularly rare in men but reading on here it seems to be untrue

It's more common in women but I often wonder how many men go undiagnosed because they avoid going to the doc or are just told to 'man up'

 

[Wolds Beef]

@H.M. Are you a night owl too? Katie struggles to get going but cannot go to bed at the usual hour! Must be a sympton.
WB

 

[ajcc]

My son was diagnosed with ME at age 8/9. We undertook something called “the lightening process” after the medical profession forecast he would be wheelchair tied by Christmas!
Within a fortnight he turned the illness around and fought his way free from the malaise. Took a lot of belief and trust but CBT was a way out.....today he is 23 year old who has spent a year “bull catching” in Oz, three years keepering and is now talking of studying for a degree.

 

[Wolds Beef]

@ajcc Enlighten us on this 'the lightening process' I am sure a lot of people will be interested, not least my daughter and @H.M. . My daughter was diagnosed with a high IQ as a young lass but lost out on a lot of School and education because of her problems.
WB

 

[Doing it for the kids]

I think CBT = yoga matt, meditating and huffing and puffing with a group of others In room full of pot plants.

i tried it once, 6 week course. I think you have to of a certain chilled out mind set. Everyone there was keen to tell the group what they couldnt do each day where as I said what I could do.

After 6 weeks I gave up, I was too highly strung. It’s does work for some though I am sure

 

[H.M.]

My son was diagnosed with ME at age 8/9. We undertook something called “the lightening process” after the medical profession forecast he would be wheelchair tied by Christmas!
Within a fortnight he turned the illness around and fought his way free from the malaise. Took a lot of belief and trust but CBT was a way out.....today he is 23 year old who has spent a year “bull catching” in Oz, three years keepering and is now talking of studying for a degree.

Glad to hear your son was able to make a full recovery
Disease progression is different for everyone and young children have the highest chance of recovery, but unfortunately there's no proven or universal treatment yet, so it's a case of what works for one often doesn't for another.

 

[H.M.]

@H.M. Are you a night owl too? Katie struggles to get going but cannot go to bed at the usual hour! Must be a sympton.
WB

I just have a habit of reading farming forums when I should be asleep sometimes

 

[Wolds Beef]

@H.M. I know there are people on here who hate Countryfile! But this Sunday they are in Lincolnshire again and 1 of the items is the Native Lincoln Red Cattle at South Ormsby Estate.
Could be interesting! Also I guess some wonderful views of our Lincolnshire Wolds.
WB

 

[yellowbelly]

@H.M. I know there are people on here who hate Countryfile! But this Sunday they are in Lincolnshire again and 1 of the items is the Native Lincoln Red Cattle at South Ormsby Estate.
Could be interesting! Also I guess some wonderful views of our Lincolnshire Wolds.
WB

.................and a little bird tells me they might be a bit about the county's sheep too

 

[ajcc]

Lightening process was a three day course, I sat in cos I was interested and v. keen /desperate to sort my son.Very nearly didn’t go second or third day because son was in such malaise and not responding to anything that was said...waste of money me thinking...
Then 20 minutes before end of last lesson the practitioner lady said “your son just smiled, this will work for you.” Paid the best £250 for that sentence!

All I really learnt was to find a really positive memorable experience that my son and me as his carer enjoyed together....ours was standing on a stewardship headland on a sunny day watching skylarks.
Now whenever at the first sign of the malaise appearing you train yourself to recreate in fine detail the sights sounds and smells of standing in “that “summer meadow gazing at an ascending skylark.
Effectively we retrained his mind whenever the malaise threatened to pre- empt it and redirect to that skylark watching.

Like driving a long a rutted track, you need to anticipate the ruts and avoid them at the last minute...you have to recognise your unique cfs symptoms and stop and relax and divert your mind for ten minutes or so to become totally absorbed by the meadow and skylark scene. Do it thoroughly; create that pleasurable memory/experience all absorbing at first sign of impending bout of cfs.
It’s probably easier to help a child and maybe it will not work for some but in my experience it was the turning point in not accepting ME.

 

[Wolds Beef]

@yellowbelly What 15 minutes of fame for you!! I hope you did not crack the lens!! Thats for a comment a few days ago.
WB

 

[yellowbelly]

@yellowbelly What 15 minutes of fame for you!! I hope you did not crack the lens!! Thats for a comment a few days ago.
WB

Nooo , it's not me - as you know, I've only got a 'face for radio'

Hopefully you'll see one of the 'more photogenic' breeders from the edge of the Wolds