celiac, who and how effected

Discussion in 'Manflu Corner' started by wdah/him, Jul 15, 2018.

  1. wdah/him

    wdah/him Member

    Location:
    tyrone
    ok so last week was in with dietiacan and got told that after various tests I am gluten intolerant. I'm not badly affected but it is hard to work around, don't have the worst symptons. So now trying to start a normal diet without gluten to see if it helps, it might take time to repair the damage.

    just looking for anyone else who has same problem and how they manage normal day to day meals


    results showed low b12, folic acid and a few others low, and a biopsy showed damage to intestine which backs up a lot of other stuff to confirm the result. it has left me tired a lot of the time and also with little interest in going out after I have a days work done. helps to explain why I have to give up stuff sooner as the muscles just cant keep going or I feel like passing out. then at night I am too tired to get a nights sleep. been going on for a 18 months or so since I first went to dr, and a good 6 months plus before hand to I decided that I had a problem.
     
  2. Badshot

    Badshot Member

    Location:
    Kent
    It's easy now, ten years ago a bloody nightmare.
    Warburtons artisan tiger loaf (gluten free Obvs) is excellent, expensive, but good.
    Betty crocker gf devil's food chocolate cake is a match for anything. As are the brownies.
    Go in a large supermarket and there's a pretty good free from section.
    My good lady is very understanding and really goes the extra mile feeding us, just take time shopping, read ingredients and above all don't panic, it's not the end of the world
     
  3. Badshot

    Badshot Member

    Location:
    Kent
    15316868049985056895546777320008.jpg 1531686829049396367937041369339.jpg 15316868763033340790649921956316.jpg 15316869073404488882758517237128.jpg
    A few of the things I eat
     
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  4. nonemouse

    nonemouse Member

    Location:
    North yorks
    Diagnosed as coeliac in 2001, dad was diagnosed coeliac in 1991. As badshot says it’s a lot easier to find gf food now, but used be able to get lots of stuff on prescription that all been stopped.

    When I was first diagnosed I was severely anemic, so was on iron tablets for a while till levels got back to normal, also diagnosed with thyroid disease at the same time, this is another auto immune disease ( as is coeliac disease) and the two are often linked. Thyroid disease can cause tiredness and lack of energy, I need take thyroxine tablets and have regular blood test to keep levels something like ok.
     
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  5. Longneck

    Longneck Member

    My mother was diagnosed as celiac after I was born (back in the 70s) and she had a hell of a time. The slightest sniff of flour and she was bad. She had to make all her own bread and it was bloody awful stuff. Eating out was a nightmare as it was mostly unheard of back then.

    As Badshot says tho supermarkets have a much better selection now and it’s a lot more ‘mainstream’

    Good luck with it.
     
  6. wdah/him

    wdah/him Member

    Location:
    tyrone
    so far haven't tracked down warbotons, but still looking for it, not a fan of rice or pasta but it might change. Tesco seems to be the friend at the minute with the cookies and stuff.

    will give betty a go, could help the sweet tooth.

    eating out would probly be the hardest thing to get on to, gluten free pizza isn't pizza.
     
  7. Badshot

    Badshot Member

    Location:
    Kent
    Pizza hut do gluten free, it's pretty good.
    Prezzo do gluten free pasta, it's excellent.
    On holiday in Scotland last year most eateries were well geared up to gf, indeed some served gf as standard. More geared up than eateries in the southeast.
     
  8. Badshot

    Badshot Member

    Location:
    Kent
    McDonald's etc, that's different, they're useless.

    I normally carry a few slices of bread with me if there's chance I'll be at a burger van or similar (show days).
     
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  9. Chasingmytail

    Chasingmytail Member

    Location:
    Newport, SE Wales
    you can live without bread and grains my husband tries to keep to a paleo diet for fitness and weight. He manages well without bread and eats so healthy. He works off the farm in the week so up early. A lot of physical work too. Huge salad, big fruit salad with home made yogurt, nuts and honey. Tea is easy. Lots of gluten free is full of other rubbish like sugar. You can live off pulses, nuts. Cakes are not difficult look for ones made of almond - tortes. Sainsburys do Doves which is gluten free. Better to avoid packet mixes if you want to heal damage.
     
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  10. Dangerous Dan

    Dangerous Dan Member

    I'm currently trying a non gluten fortnight. Have been feeling crap for a while......lack of energy being biggest culprit. Always tried to combat this with chocolate and sugary food and drink. Nothing too extreme. Eat a lot of cereal bars, biscuits, bread, couple little chocolate bars every day. Last couple weeks of "normal life" have been VERY tough. Have little to no energy, really flagging at the beginning of milkings which just carried on right through. Feel bloated most of the day etc etc. So have now decided to try cut out all thinga gluten, which is apparently harder than it looks. Who knew that Ketchup and branston pickle have forms of gluten in? Anyway, after some advice really...... What do people eat for the quick release energy? Im trying to eat more fruit, veg, eggs and things that are gluten free anyway but could do with that sugary chocy bar sort of thing......
     
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  11. Dairymantom

    Dairymantom New Member

    My Mrs is badly celiac. Basically buy gluten free bread and pasta and the rest of stuff is mainly gluten free nowadays anyway. Ketchup etc is gluten free. Most meats assuming you dont buy the cheap meats bulked up with wheat. But do read back of it all. Everything is in bold if allergens now, scan for the bold writing on lables and doesnt say wheat or barley your be good to go. Dont fall for the gluten free isle where prices are ridiculous. Its like a caveman diet, meat veg and fruit.. keep it simple. If your intollerent cross contamintion eating out wont matter, if your allergic then you will know about it. My mrs will know within minutes, extreem cramping, throwing up and all the other bits that go with it even just putting my knife back into the butter after doing my normal toast!
     
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  12. Dangerous Dan

    Dangerous Dan Member

    Wow. That sounds horrendous!!!!! Definitely not that bad. Im guessing she manages it but it must be a proper ball ache to deal with???
     
  13. Dairymantom

    Dairymantom New Member

    It was for first few months just until got our head round what contains gluten. Once you know, shopping becomes normal again and dont tend to look really shopping now. But took doctors about 10 years to diagnose, wasnt till endoscopy to confirm. Amazing how many people now react to gluten! Biggest pain in the arse is going out to eat trying to get something not cross contaminated even if they say it isnt. Just gives me a reason not to pay for pricey meals out now!! But yes dont be to skeptical about a gluten free diet, it will get easier once you know whats what. Best of luck with it though and a heads up.. gluten free pasta tastes like crap
     
  14. wdah/him

    wdah/him Member

    Location:
    tyrone
    im finding it a bit easier as I go. fella at work gave me a couple of books for recipes. don't like the idea of just swapping out bread for none gluten stuff, did u read the back of it and taste it, so trying to keep it for lunch box only. a lot of normal food is gluten free but as said getting to know what is. moving to rice to try a bit of it as a quick meal but not a regular thing, has been mentioned about stirfry but again not a normal food for me but will try it. might as well try to get healthy when changing the diet.

    @Dangerous Dan, my symptons were like yours but took two years and a biopsy to diagnose. could take longer than a fortnight to notice a change
     
  15. Badshot

    Badshot Member

    Location:
    Kent
    Uncle Ben's golden vegetable microwave rice is really good.
     
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  16. wdah/him

    wdah/him Member

    Location:
    tyrone
    go
    got it this evening along with a mushroom one too,
     
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  17. Dangerous Dan

    Dangerous Dan Member

    [QUOTE="
    @Dangerous Dan, my symptons were like yours but took two years and a biopsy to diagnose. could take longer than a fortnight to notice a change[/QUOTE]


    I've had problems for years but have wife and I have only just twigged it could be the diet. If there is no change after two weeks, I'll pop to the doctor. Already lactose intolerant to a degree.....all fun and games eh?
     
  18. willy

    willy Member

    Location:
    Rutland
    I had a test and came back negative, but I am damn sure gluten doesn’t suit me, feel fabulous when I go gluten free and then start to drift back to bread and then feel lethargic and bloated and struggle to do a solid stool!!!

    Can tests be wrong?
     
  19. wdah/him

    wdah/him Member

    Location:
    tyrone
    what was your diet leading up to the test. I was told to change nothing might have been three months before the test so as not to give false reading.

    uncle bens rice and mushroom is ok.
     
  20. Badshot

    Badshot Member

    Location:
    Kent
    I tested clear for coeliac too.
    I said to the doctor how come I feel so bad when eating wheat then? His response was simple, just because you're not coeliac doesn't mean you're not wheat intolerant if it doesn't agree with you don't eat it.
     
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