celiac, who and how effected

[willy]

Another symptom that has been creeping up is awful hangovers, not headaches but seriously feeling nauseous and totally worn out. Maybe. It’s just getting older, but it seriously puts me off a night out now.

 

[Badshot]

Another symptom that has been creeping up is awful hangovers, not headaches but seriously feeling nauseous and totally worn out. Maybe. It’s just getting older, but it seriously puts me off a night out now.

Get on cider instead of beer

 

[Dangerous Dan]

I have the worn out feeling without any alcohol. Chased two lambs around and threw them in back of pickup, had to stumble to pickup and just sit for 5 minutes before had the energy to even drive. Would at least be in a better mood if it was alcohol not escape artist lambs.

 

[jade35]

Diagnosed as coeliac in 2001, dad was diagnosed coeliac in 1991. As badshot says it’s a lot easier to find gf food now, but used be able to get lots of stuff on prescription that all been stopped.

When I was first diagnosed I was severely anemic, so was on iron tablets for a while till levels got back to normal, also diagnosed with thyroid disease at the same time, this is another auto immune disease ( as is coeliac disease) and the two are often linked. Thyroid disease can cause tiredness and lack of energy, I need take thyroxine tablets and have regular blood test to keep levels something like ok.

I have the worn out feeling without any alcohol. Chased two lambs around and threw them in back of pickup, had to stumble to pickup and just sit for 5 minutes before had the energy to even drive. Would at least be in a better mood if it was alcohol not escape artist lambs.

Have been reading a little bit about thyroid disease lately and have realised that it pretty much controls the body! Look up under/over active thyroid symptoms

https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/symptoms/

This is a more in depth list

http://www.thyroiduk.org.uk/tuk/about_the_thyroid/hypothyroidism_signs_symptoms.html


There is also research that says artifical sweeteners suppress the thyroid gland https://www.endocrineweb.com/profes...-hypothyroidism-induced-artificial-sweeteners

 

[mrs mtx]

I had a test and came back negative, but I am damn sure gluten doesn’t suit me, feel fabulous when I go gluten free and then start to drift back to bread and then feel lethargic and bloated and struggle to do a solid stool!!!

Can tests be wrong?

You can be allergic to gluten without being coeliac. If you have the symptoms and cutting it out helps then don't worry about what a single test result says

 

[Badshot]

I think I must have eaten something I shouldn't, bad tummy, ache all over, feel generally pants.
Doesn't help I've a nasty summer cold atm, but this has all the hallmarks of eating wheat.
Only thing I've had, which I haven't had for ages is walkers cheese n onion crisps.

 

[mrs mtx]

I think I must have eaten something I shouldn't, bad tummy, ache all over, feel generally pants.
Doesn't help I've a nasty summer cold atm, but this has all the hallmarks of eating wheat.
Only thing I've had, which I haven't had for ages is walkers cheese n onion crisps.

They are a may contain wheat so could be that they were contaminated with some wheat? It’s teakly unlickely but Rhys has reacted through just may contains before

 

[Badshot]

They are a may contain wheat so could be that they were contaminated with some wheat? It’s teakly unlickely but Rhys has reacted through just may contains before

I don't normally react to a little bit of wheat.
Maybe it's getting worse.

 

[mrs mtx]

I don't normally react to a little bit of wheat.
Maybe it's getting worse.

Fingers crossed a massive amount was snuck in to something else you ate

 

[Badshot]

Fingers crossed a massive amount was snuck in to something else you ate

If it was I'm in trouble.
Had free from chicken breast fillets, and veg

 

[wdah/him]

I ruled out walkers, think Tesco own is ok, its one of the issues I am having too crisp. hard to get a snack in a shop unless its fruit. I have been put on folic acid tablets, and im hopping that has something to do with me being more tired lately.

 

[Badshot]

Well, taken a turn for the worse.
Had really bad cold like symptoms a few weeks ago, just going this last week, started cutting spring wheat, and they're back, with a vengeance.
Took a hay fever tablet, which eased the cough within half an hour.
Just had blood taken to retest for coeliac, and also general wheat allergy test.
Find out next week if I need to grow barley instead of wheat.

 

[davidroberts30]

Well, taken a turn for the worse.
Had really bad cold like symptoms a few weeks ago, just going this last week, started cutting spring wheat, and they're back, with a vengeance.
Took a hay fever tablet, which eased the cough within half an hour.
Just had blood taken to retest for coeliac, and also general wheat allergy test.
Find out next week if I need to grow barley instead of wheat.

grow buckwheat

 

[ironduke]

My wife has had ulcerative colitis for 15 years and this January was recommended to go on a low FODMAP diet, it's basically putting foods into new categories based on short chain carbohydrates, once you get your head round it it's easy. What a difference, from being bloated and tired all the time, to losing weight, no bloating loads more energy. As well as gluten there are other ones she can't have now including yeast in general and onions and garlic.
Turns out onions leeks and garlic are really difficult to digest for anyone, so for someone with gastro problems it's a no no.
Anyway might be worth you investigating!

 

[wdah/him]

My wife has had ulcerative colitis for 15 years and this January was recommended to go on a low FODMAP diet, it's basically putting foods into new categories based on short chain carbohydrates, once you get your head round it it's easy. What a difference, from being bloated and tired all the time, to losing weight, no bloating loads more energy. As well as gluten there are other ones she can't have now including yeast in general and onions and garlic.
Turns out onions leeks and garlic are really difficult to digest for anyone, so for someone with gastro problems it's a no no.
Anyway might be worth you investigating!

interesting u say yeast, somethings I looked at gluten free and in the ingredients the only thing missing was yeast, apart form wheat etc.

few days I have been getting tired after lunch was mentioning it to day when asked why I was so tired and the work manager said something about a carbo hit-ie to much carbs in my last meal. too much or higher than normal relases some hormone that is the same as the one released to out u to sleep at night. he used more words but I think that was the just of it. must be the new bread things I like, sure why would it be anything else they are gluten free and taste nice, need to rearrange the lunch box of they are to continue.

 

[renewablejohn]

ok so last week was in with dietiacan and got told that after various tests I am gluten intolerant. I'm not badly affected but it is hard to work around, don't have the worst symptons. So now trying to start a normal diet without gluten to see if it helps, it might take time to repair the damage.

just looking for anyone else who has same problem and how they manage normal day to day meals


results showed low b12, folic acid and a few others low, and a biopsy showed damage to intestine which backs up a lot of other stuff to confirm the result. it has left me tired a lot of the time and also with little interest in going out after I have a days work done. helps to explain why I have to give up stuff sooner as the muscles just cant keep going or I feel like passing out. then at night I am too tired to get a nights sleep. been going on for a 18 months or so since I first went to dr, and a good 6 months plus before hand to I decided that I had a problem.

Hi-it's Mrs Renewable John here,
I was diagnosed as coeliac 18 months ago. I didn't have the worst symptoms either. It is a shock as at first I didn't know what i would eat but it gets easier. For breakfast I eat Nains gluten free porridge oats with milk and fruit. Mid morning I have fruit. Lunch -a gluten free sandwich (Tesco Sandwich Thins).Gluten free bread takes some getting used to but I like those as they are not too bready! I have Aldi yoghurts with fruit for lunch. At tea time cooked chicken,salmon fillet
Tesco gluten free pies, gluten free fish fingers. I try not to eat much prepared gluten free products as they are high in sugars and fats. you can eat most things but at first you spend ages reading labels to make sure you can have it. You will be amazed at what they put gluten in so you have to be careful. I now mince up my own beef from the butchers so I can have spaghetti and gluten free pasta. You can't have Hollands steak puddings or prepared ready meals as the sauces contain non gluten free flour. I was lucky as I cooked most meals from scratch. I had the support of a dietician who helps with vouchers so you can try products before you purchase. Gluten free food is at least twice the price as the same products with gluten so that was a big shock. If you are in the uk ask at your doctors to see if you can have some food on prescription. Coeliac Uk have fought hard to get food on prescription as the government were trying to stop providing this so I would urge you to see if you can get it. If I can be of any more help please message back as i would love to help you.Eating out can be a problem.I always phone ahead to ask if they have a gluten free menu. It has improved in the last 18 months but it pays to check. I still take a packed lunch with me on days out so i won't starve. Good Luck.

 

[wdah/him]

Hi-it's Mrs Renewable John here,
I was diagnosed as coeliac 18 months ago. I didn't have the worst symptoms either. It is a shock as at first I didn't know what i would eat but it gets easier. For breakfast I eat Nains gluten free porridge oats with milk and fruit. Mid morning I have fruit. Lunch -a gluten free sandwich (Tesco Sandwich Thins).Gluten free bread takes some getting used to but I like those as they are not too bready! I have Aldi yoghurts with fruit for lunch. At tea time cooked chicken,salmon fillet
Tesco gluten free pies, gluten free fish fingers. I try not to eat much prepared gluten free products as they are high in sugars and fats. you can eat most things but at first you spend ages reading labels to make sure you can have it. You will be amazed at what they put gluten in so you have to be careful. I now mince up my own beef from the butchers so I can have spaghetti and gluten free pasta. You can't have Hollands steak puddings or prepared ready meals as the sauces contain non gluten free flour. I was lucky as I cooked most meals from scratch. I had the support of a dietician who helps with vouchers so you can try products before you purchase. Gluten free food is at least twice the price as the same products with gluten so that was a big shock. If you are in the uk ask at your doctors to see if you can have some food on prescription. Coeliac Uk have fought hard to get food on prescription as the government were trying to stop providing this so I would urge you to see if you can get it. If I can be of any more help please message back as i would love to help you.Eating out can be a problem.I always phone ahead to ask if they have a gluten free menu. It has improved in the last 18 months but it pays to check. I still take a packed lunch with me on days out so i won't starve. Good Luck.

thanks. have got a few of the gluten free samples and not to pushed to be honest. have been picking up on some of the gluten free stuff, m and s sandwich thins-Tesco never seem to have any and a new true bread thins which are brown. I didn't eat much fruit but its coming on. oddly I don't eat near as much chocolate and sweet stuff as I use to, but diffently have more energy.

have a local woman who is a dietican and will get help of her, the one I have been given is stretch woth the work load, last seen her 10 july but its not her fault, been managing ok, I have read a lot of labels and looked up more on the celiac website as some stuff doesn't mention gluten, wheat etc but still may contain enough to effect it.

 

[renewablejohn]

I ruled out walkers, think Tesco own is ok, its one of the issues I am having too crisp. hard to get a snack in a shop unless its fruit. I have been put on folic acid tablets, and im hopping that has something to do with me being more tired lately.

Always liked Seabrook crinkle cut crisps but never realised there Gluten free until the better half was looking for Gluten free snacks.

 

[wdah/him]

im finding quite a few crisps are gluten free, im also losing weight.

I seem to relapse into a few days tiredness but cant figure out what it is I have eaten, thinking it must be some of the packed chicken or something.

 

[renewablejohn]

im finding quite a few crisps are gluten free, im also losing weight.

I seem to relapse into a few days tiredness but cant figure out what it is I have eaten, thinking it must be some of the packed chicken or something.

Some cooked ham has bread crumbs.

Also do our own mince now as most sausages contain bread which then contaminates the mincer for other mince products like mince beef. You just need to make the assumption that the butcher does not dismantle and clean the mincer between a batch of sausage and a batch of mince.