Chronic pain - I'm wrecked.

Discussion in 'Manflu Corner' started by MissSteak, Jun 4, 2018.

  1. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Come all thee who are living in a world with chronic pain. How do you cope??

    I have conditions called endometriosis and adenomyosis, as well as hip bursitis and hypermobility of my joints.

    The strong opiods and NSAIDs are losing their potency, the tens machine has variable results, sleep is either non existence or I am fatigued for days in end.

    What do you do to relieve pain? Or just have a moan about chronic conditions and ailments.

    Rant away. Let me know I'm not alone!
     
  2. Lili

    Lili Member

    Hi @MissSteak
    1. Ask your GP if there is a pain clinic at your local hospital or in your area Health Board.
    2. Ask your GP if they can refer you to a Pain Management Centre.
    3. Look up Expert Patient Programme in your area. (not sure about Scotland) Free course 2 hour sessions over 6 weeks learning to manage various conditions including chronic pain. You will also meet others who are suffering.
    Don't give up trying, you are not alone and there is help out there somewhere to manage your pain. Best wishes and good luck
     
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  3. DartmoorEwe

    DartmoorEwe Member

    Location:
    Yelverton, UK
    You are not alone. I have a slipped disk and went through a stage in 2012 when I had to take a year off work and could not sleep, in the end I had an operation and I've been on probation ever since but am now working and functioning albeit on pain killers every day. The thing that helped me was to keep a pain diary, I live in the present so if I'm having a bad day its as if all days are bad. Keeping a pain diary helped me keep things in perspective, or helped me to know that it really was as bad as it feels. It also helped the medics know just how bad it is and advise accordingly. Drugs help a bit. Alternative therapies are horses for courses. If you're getting depressed with it (I was) I found to literally count my blessings and write them down. I've heard good things about cognitive behavioural therapy but I have not done it myself.

    Its a tough thing to go through. I hope you get better soon.
     
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  4. Chae1

    Chae1 Member

    Location:
    Aberdeenshire
    Have you tried smoking cannabis? It's meant to help people suffering from ms.

    Must be a nightmare. We don't appreciate our good health till it's gone.
     
  5. Can you do a Pilates class?
     
  6. Princess Pooper

    Location:
    East Mids
    My sympathies. I'm not sure what has caused your hip bursitis, which I had at one point, but has now been re-defined as greater trochanteric pain syndrome and I found that with physiotherapy and things like lying with a cushion between my knees when sleeping on my side the pain disappeared. I do live with low level chronic pain due to an autoimmune disease and finger injuries, although I can have long periods of respite and it is completely energy sapping. If it got worse I would ask for a pain management course. I do engage with an online community through 'Health unlocked; where lots of chronic conditions are covered and we all feel we can have a rant and compare notes. I wish you well.
     
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  7. Dry Rot

    Dry Rot Member

    Location:
    Scotland
    Back pain has to be the worst. I am OK now but years ago it was terrible. Finally had the op which did not entirely solve the problem. When I got through a week's supply of pain killers in one day, I went for the whiskey bottle which is not to be recommended. A hard mattress was a great help.

    Of course, many suspect you are a malingerer as you can do some things without a problem. If only they knew what you are going through. Total hell!
     
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  8. Weasel

    Weasel Member

    Location:
    in the hills

    Ma sister has hypermobility. Not a nice thing
     
  9. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    As an update I am on new medication for a condition called fibromyalgia. The medication is wonderful, apart from feeling a little drunk. It's by no means perfect, still aches and pains but slowly getting my quality of life back.
     
  10. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Thank you for your kind words and sorry for the delay in getting back to you.
    I have been given a trial of pregabalin which is helping, apart from I feel drunk/fuzzy.

    I keep forgetting as my GP about a pain clinic or online course. I have done CBT and mindfulness before, but sometimes the positive thinking isn't enough.
     
  11. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Thank you for your nice message. I'm still suffering but trying out a new medication which is helping, apart from the fuzzy wuzzy feeling. I have let my pain diary slip of late, I need to get back into it. My main thought is I've survived all of my worst days, I just need to get over this.
     
  12. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Thanks. I haven't tried, been thinking of it but not taken that leap. Too much of a good girl for that, apart from YF drinking days! I'm on some strong meds now, but it's a depressing thought to be strong meds for now until I snuff it.
     
  13. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    There isn't any that local to me, and it's a thought going back out once your in for the night. Especially in winter. I do various stretches I found online and they do help, but my hip just won't relax some days. Getting my left wellie or boots on is a total faff. I can't lift my left leg high enough to get it into my wellie so I kick it over and shimmy my foot in sideways. I'm 32 going on 92!
     
  14. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Hello. Yip, I have a big cushion I use for padding out my knees and another being my back. I have a huge foam topper ony bed to take the pressure of my hip.

    Chronic conditions are such a energy snap aren't they? Good plan on the health unlocked forum. I am not on it, but I am in some Facebook private groups for various conditions that are helpful. I've had to block them from my news feed and only dip into the groups when I want to as it was making me more depressed to constantly see these posts.
     
  15. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    Christ, all those pain killers plus whisky must have taken its toll. Glad you're still here to tell the tale. I have upped the pain meds to more than I should some days but having already caused bleeding in my stomach I don't want to make it worse.

    Damn right some doctors think you're a malingering waster. I've eventually found a good GP. She's worth her weight in Gold.
     
  16. MissSteak

    MissSteak Member

    Location:
    Aberdeenshire
    It is not, it now explains why I can't bear high heels. I stagger about like a baby calf on a trampoline.
     
  17. robo

    robo Member

    Location:
    northamptonshire
    Please contact me on my email .......i would like to chat and swap pain dayss, you are not alone, squirelnutkin@icloud.com
     
    MissSteak likes this.
  18. DartmoorEwe

    DartmoorEwe Member

    Location:
    Yelverton, UK
    I prefer chatting on the open forum where our chat can help others who are perhaps not brave enough to speak up. My own story is a success in that I'm off the pain relief and am now stiff from old age as much as anything else. It has been a long journey and I had a lot of support.

    It sounds like you have pain issues, I do hope you feel much better soon.
     
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  19. JD3650

    JD3650 New Member

    Watch out with fibromyalgia diagnosis's as they are sometimes as easy option for GP
     
    MissSteak likes this.
  20. Goatherderess

    Goatherderess Member

    Location:
    North Dorset
    I have no idea if it's any good, but there is an app called Curable which can help with pain perception. I downloaded it as I was aching all over and then realised I'd been doing some therapy and dealing with serious issues and my body was doing this in response. I keep meaning to have a go and see what it is like
     
    MissSteak likes this.

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