Macmillan cancer support meat free march

[Northeastfarmer]

Hit them in the pocket...it’s the only way

 

[DrWazzock]

Am I the only one who is surprised that we are reliant on charities for end of life care ( or are we?).
When dad passed away we had excellent help from the NHS funded basic carer team for daily practical matters over a few weeks but they weren't allowed to administer the final intravenous pain relief which would only have been needed for the last few hours when he could no longer take it orally. For this we had to rely on Macmillan who for whatever reason couldn't get here. The necessary equipment was here but nobody to set it up and running.
To me it looked like a job that the district nurse could easily have done but the district nurse seemed to serve no useful purpose at all in the whole saga, being kind of peripheral to it. The local GP practice was similar, initially diagnosing a skin melanoma as nothing to worry about (only spotted by the blood pressure nurse) and then another GP misdiagnosed a brain tumour as a bit of vertigo, finally spotted by a locum who knew her job.
The whole end of life system seemed very hit and miss. The state assumes a charity will step in, but they (the charity) don't seem to be under any obligation or capable of providing a comprehensivd service so you end up with no help at all in the final hours. Some aspects of the care were very good but it appeared to me that the higher up the tree you went, the poorer the service was, and the more bogged down they were in form filling.

That was our experience, and it wasn't very satisfactory at all, causing a lot of distress for nearest and dearest, especially my mother who always blames herself that she couldn't do more to ease his pain in final hours. She telephoned the required numbers many times but no help was forthcoming. It was a bank holiday.
To my mind such an important function as the pain relief in your final hours should be a state provided service not a hit and miss charity affair. As for supporting the relatives with grief and loss, we didn't need any of that. We can deal with that. We weren't the one suffering.

 

[Wolds Beef]

Messaged there faceache page 2 days ago! Apology this morning from them!
WB

 

[Sid]

Am I the only one who is surprised that we are reliant on charities for end of life care ( or are we?).
When dad passed away we had excellent help from the NHS funded basic carer team for daily practical matters over a few weeks but they weren't allowed to administer the final intravenous pain relief which would only have been needed for the last few hours when he could no longer take it orally. For this we had to rely on Macmillan who for whatever reason couldn't get here. The necessary equipment was here but nobody to set it up and running.
To me it looked like a job that the district nurse could easily have done but the district nurse seemed to serve no useful purpose at all in the whole saga, being kind of peripheral to it. The local GP practice was similar, initially diagnosing a skin melanoma as nothing to worry about (only spotted by the blood pressure nurse) and then another GP misdiagnosed a brain tumour as a bit of vertigo, finally spotted by a locum who knew her job.
The whole end of life system seemed very hit and miss. The state assumes a charity will step in, but they (the charity) don't seem to be under any obligation or capable of providing a comprehensivd service so you end up with no help at all in the final hours. Some aspects of the care were very good but it appeared to me that the higher up the tree you went, the poorer the service was, and the more bogged down they were in form filling.

That was our experience, and it wasn't very satisfactory at all, causing a lot of distress for nearest and dearest, especially my mother who always blames herself that she couldn't do more to ease his pain in final hours. She telephoned the required numbers many times but no help was forthcoming. It was a bank holiday.
To my mind such an important function as the pain relief in your final hours should be a state provided service not a hit and miss charity affair. As for supporting the relatives with grief and loss, we didn't need any of that. We can deal with that. We weren't the one suffering.

North devon hospice gave care to my mother in her final days along side the district nurses.
Apart from one small issue both were absolutely brilliant.

I am going through the same process with my father atm. My partner is caring for him 24/7, God bless her for all her hard work !

 

[Aspiring Peasants]

Just got the same reply as others have. Hopefully they will sack whoever advises them on funding and PR

 

[Muddyroads]

I’ve had the same reply too. I copied a link to this thread and suggested that Jessica has a read to see how much their idea has upset the rural community. I’ll be interested to see if I hear back from her.

 

[Arceye]

So by saying they are no longer actively promoting it they are saying we're still doing it, just keeping a lower profile?

Had the same thought after I received the email reply to my complaint.
But if it's still running and not promoted it's a waste of effort. I guess it's a way of perhaps saving face.
Hmmmm… won the argument but lost the vote springs to mind.
On the plus side it shows that a lot of ordinary folk can stand up and make a difference.
Well done to everyone who emailed them.

 

[steveR]

Messaged there faceache page 2 days ago! Apology this morning from them!
WB

An apology, or the standard form, cut and paste??